Wednesday, February 29, 2012

Rare Disease day!

Today is Rare-Disease day!
So there is not too much on rare disease, but I found some blog posts and news articles on it.
Here's this blog post from Intech about rare disease day

 ThisAnd this post about family living with rare diseases

rare disease day websites of Europe. http://goo.gl/EMH9U


rare disease day websites of America. http://goo.gl/5aS84   http://goo.gl/vCkp1

Children's rare disease day website.  http://goo.gl/758rA





the rare disease websites of the diseases I have, Still's disease http://goo.gl/tbu7m and Sjogren's syndrome  http://goo.gl/UJcee


Some days I don't like that I have a rare disease because I have never met anyone who has the same diseases. Online I have, but never in person. Believe me, I can't wait for that day.
Hope You have a wonderful March!! and had a great Leap Day!!
comes every four years and I didn't nothing big just the normal, go out for a bit then come home.

I better go, I want to do some stuff, before bed.
Have a Wonderful Night or DAY!
-Pamela AKA FaithGirl
Keep the FAITH!! and be clam! (even how tough it is!)
















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Thank You Commenting! & I always read them.
Xx Pam